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Here’s the full-blown version of Trisha’s misdiagnosis story.
Since that fateful odyssey, she has worked with other patients who have SPTCL. You can read more about them at this website.
And what’s Trisha doing today? You can learn what she’s up to here.
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You learned a very important lesson that I also learned the hard way. Always review your medical records. Doctors misread tests and omit items that are discussed during appointments. Sometimes they say one thing and write another. I didn’t realize the inaccuracies until I applied for disability payments without first reviewing the records I sent to document my claim. It didn’t end well.
I thank God that you had the courage to ask questions and seek advice from elsewhere. Many people don’t. Thanks for sharing your story.
Hi – and thank you! I too have had SEVERAL diagnosis which I have challenged only to find out that the Doc’s were wrong. I am not suggesting that ALL doc’s are wrong but many have lost the interest in treating the person and have become a partner with the insurance companies! Good work.. but please also inform people here that there is a mode (and I experienced this myself ) whereby they can go through a process and have the physician sanctioned by their State Boards… now of course you already know that the Boards are mostly policed by themselves and so most severe concerns are answered by a slap on the wrist.. it took me 4 years but I was successful!
One more think if you please DCIS.. non-invasive breast cancer (it use to be considered a precursor now almost an absolute finding of potential cancer) – I believe women are being diagnosed with this “‘cancer” when the medical establishment doesn’t even know WHAT it really is. Mine was not found with mamograms (which I believe are outdated and only used because they are CHEAP) my DCIS was found using an MRI. Women, if you are at high risk insist on an MRI if you have insurance! Ir DCIS IS cancer it is the earliest stage of cancer and has the most hope for us! Because of fear instilled by the medical community I went along EVEN having had other experiences of doc’s who proceeded without regard for the patient and more regard for their pocket book!
Doc’s have you forgot “first, do NO harm”????
Thanks for your work here – and please keep it up!
Deployment infections coming to the hospital near you.
A rare drug-resistant bacteria is becoming more common in areahospitals, due in
part to military personnel bringing it home from Iraq, local health experts
The bacteria, Acinetobacter baumannii, is not a threat to healthy people.
However, officials say it can be dangerous for people who are already ill and
have weak immune systems, because it causes wound infections, pneumonia and
bloodstream infections that can lead to death.
Health experts don’t know how much returning soldiers contribute to the
bacteria’s spread. But they all agree the bacteria is spreading.
No one, including state and federal health agencies, is tracking the number of
people who have become sickened with the bacteria.
“There’s no question that Acinetobacter baumannii caused a challenge in military
medical facilities,” said Dr. Arjun Srinivasan, a medical epidemiologist at the
“Anecdotally, we are getting calls from health-care facilities across the
country that are reporting more cases,” he said. “These reports are becoming
more common.” There are more deahts.
Doctors make mistakes all the time as they are human. Your story is not unique. If your anger still directs your decisions and your disdain for the medical community persists, I would recommend a naturopath or chiropractor. I would reserve your visit to these individuals only for dire life-threateniing emergencies. Try this approach and your anger may dissipate.
My husband has been diagnosed with a GBM that has been operated on. He is presently going through radiation and chemotherapy. You never mentioned what treatment Glen chose. CFould you put him in touch iwth us. In my opinion networking helps tremendously. The more people you talk to the more information you receive and as a result you can then make a more inteligent decision on the course of action. i would very much like to hear from Glen and how he is doing. You may provide him with my email if he is willing to communicate with us. Thank you for your work. It is so important and if you need any help let me know. I have a background in consumer education.
Best Regards, Claire Pickman
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