Category: SPTCL

Heather, SPTCL, Another Misdiagnosis and Doctors Who Should Not Practice Medicine

Here’s the good news:  Heather does not have SPTCL. Here’s the bad news:  Heather does have another type of T-cell lymphoma called CGD-TCL, cutaneous gamma-delta t-cell lymphoma.  Also written with Greek letters:  cutaneous ?/? T-cell lymphoma To say that both Heather and I were shocked is an understatement.  If you read my post a few …

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Misdiagnosis, a Visit to the Lab and One Last Point

For those of you who have read my misdiagnosis story, you know that one of the ultimate heroes was the pathologist (I’ll call him Dr. H.) who helped me understand how the misdiagnosis happened.  Even though he was one of the doctors responsible for getting it wrong, in the end, he didn’t turn away or …

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SPTCL Rears Its Ugly Head Again!

Almost had a melt-down again last night…. but by the time the evening was over, it was almost a joyful experience! I received a note from a young woman named Heather, as follows: I would like to talk with you. I was diagnosed with SPTCL yesterday. I read your story and I feel exactly the …

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SPTCL and Post-Traumatic Meltdown

It comes on in a rush, and it makes me feel like a Sweet-tart — you know, one of those candies that you bite into, it grabs the sour corners of your tongue, and it just dissolves…. The overwhelming dread and tears begin to descend, sometimes I just collapse. It takes a good cry to …

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