Category: SPTCL

Dec 29 2008

An End Of the Year Revisit — SPTCL and Misdiagnosis

If you’ve read this blog for awhile, then you know 2008 was the year of SPTCL misdiagnoses. SPTCL, subcutaneous panniculitis-like T-cell lymphoma, was the rare and deadly lymphoma that kick-started my work as Every Patient’s Advocate.  I was told I had it.  In fact, I was told by two labs and an oncologist that I …

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Oct 31 2008

Two Healthy De-Cancered Patients

De-cancered — a good word, isn’t it?  Look at these two faces — they look quite healthy, don’t you think? Well — they most certainly are — quite healthy, despite the chemo both faced prior to proving neither one had the cancer she was diagnosed with. What this photo doesn’t show, is the emotion behind …

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Sep 11 2008

Daniel Was Misdiagnosed with SPTCL, Too

It’s been awhile since I’ve posted.  In that time I’ve been the Gramma-sitter for my two little grandsons while their new baby sister arrived (welcome Kyla Shay!), buried my ex-husband’s cremains (he died last April), spoken to two groups of patients, recorded two radio shows and finished my book proposal. Enough excuses, you say! But …

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Aug 25 2008

Daniel’s SPTCL Diagnosis is Suspect, Too

When I was (mis)diagnosed with SPTCL (subcutaneous panniculitis-like T-cell lyphoma) in 2004, I was handed a book, published in July 2004, that stated that “fewer than 100 cases have been reported in the last decade.” Yeah — really, really rare. Because that’s a book used by oncologists all over the world. Then, from Fall 2004 …

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Jul 08 2008

Heather, SPTCL, the Next Chapter – Hang on to Your Hat!

[To catch up on previous chapters of Heather’s story, link here (post #1) and here (post#2.)] Heather had her first oncology appointment today.  She was lucky to get in so quickly after her primary care physician ditched her (that still makes me shudder) and she was prepared.  Last week, after my post about her diagnosis …

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