Archive for Medical Errors / Mistakes / Misdiagnosis

Heather, SPTCL, the Next Chapter – Hang on to Your Hat!

[To catch up on previous chapters of Heather’s story, link here (post #1) and here (post#2.)] Heather had her first oncology appointment today.  She was lucky to get in so quickly after her primary care physician ditched her (that still makes me shudder) and she was prepared.  Last week, after my post about her diagnosis […]

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Posted in: Doctor Communication, Healthcare Quality, Medical Errors / Mistakes / Misdiagnosis, Patient Advocacy, Patient Empowerment, SPTCL

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CNN’s Heroes of Patient Empowerment. A Humble Thank You.

There aren’t many times that I am left speechless, but this is one of them. If you are a regular reader of CNN’s Empowered Patient, offered each week by Elizabeth Cohen, then you know there have been any number of outstanding advocates featured. People who work tirelessly to improve our safety, access and navigation through […]

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Posted in: Healthcare Quality, Media, Medical Errors / Mistakes / Misdiagnosis, Patient Advocacy, Patient Empowerment, Patient Safety, Pharmaceutical Drugs

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Heather, SPTCL, Another Misdiagnosis and Doctors Who Should Not Practice Medicine

Here’s the good news:  Heather does not have SPTCL. Here’s the bad news:  Heather does have another type of T-cell lymphoma called CGD-TCL, cutaneous gamma-delta t-cell lymphoma.  Also written with Greek letters:  cutaneous ?/? T-cell lymphoma To say that both Heather and I were shocked is an understatement.  If you read my post a few […]

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Posted in: Doctor Communication, Health /Medical Consumerism, Healthcare Quality, Medical Errors / Mistakes / Misdiagnosis, Medical Records, Patient Advocacy, Patient Empowerment, Patient Safety, Patient Tools, Spirituality, SPTCL

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Misdiagnosis, a Visit to the Lab and One Last Point

For those of you who have read my misdiagnosis story, you know that one of the ultimate heroes was the pathologist (I’ll call him Dr. H.) who helped me understand how the misdiagnosis happened.  Even though he was one of the doctors responsible for getting it wrong, in the end, he didn’t turn away or […]

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Posted in: Health /Medical Consumerism, Hospitals, Medical and Research Studies, Medical Errors / Mistakes / Misdiagnosis, Patient Empowerment, Patient Tools, Privacy and Security, SPTCL

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The Blue Beast, and Your Chance to Make a Difference

I spent a few hours yesterday with a delightful team of people who YOU should get to know, too. Meg, Pauline and Blake are traversing the country this summer in a big blue bus (they call it the blue beast!) in the Cover America Tour. Sponsored by Consumers Union (the Consumer Reports folks) it is […]

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Posted in: Health /Medical Consumerism, Healthcare Quality, Media, Medical Errors / Mistakes / Misdiagnosis, Patient Advocacy, Patient Empowerment, Patient Safety, Patient Tools, Self Help

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