Several contacts and occurrences of late have reminded me of how trust without verification can get us into medical trouble.
My first BIG reminder — more like a wake-up call — comes from my invitation to those on my email list to join me at the Pharmaceutical Marketing Conference in Philadelphia in September. I asked for people with stories to share about their experiences with pharma companies to send me some basic information. The goal is to find a cross-section of opinions to share with the pharma industry.
I was jolted right out of my desk chair at the responses — the majority of which come from people who trusted their doctors to provide them with a drug to help them, only to learn that they are either now addicted, or someone they love has attempted suicide (and sadly, two were successful.) They trusted the doctor, they trusted the drug, and they are paying the price.
(Reminds me — if you have a story to share — please let me know! You can write to me at: blog@diagKNOWsis.org )
My next reminder comes from a gentleman who is scheduled for surgery in September. Like Max, who I blogged about months ago, Jim was told he needed his prostate removed and had no idea he had more than one option for that kind of surgery. He trusted the surgeon he visited who told him he needed laprascopic removal, only to find out there were other options. Now he no longer trusts the surgeon because he feels like information was kept from him. He has changed surgeons.
Then I heard from Doris, who read my post last week about retaliation. She has been undiagnosed for months, having been told she has everything from an autoimmune disorder, to chronic fatigue, to rheumatoid arthritis, and now they are testing her for MS. She thinks now that her doctor is just running tests to shut her up — and feels like it’s HIS form of retaliation. She no longer trusts that he is making recommendations in her best interest.
How frightening that so many have lost so much trust in their healthcare providers, and the system in general. And yet, it’s absolutely no surprise to me. The system is set up for everyone to fail (except, of course, the insurance companies and the pharm companies — another story for another day….)
Which only makes it that much more imperative that we take an active role in the research and decision making aspects of our own care.
Begin at the doctor’s office as you are being diagnosed and s/he is providing treatment recommendations. Always ask, “What else could it be?” “What other treatments are available.” “Are you sure you are telling me everything that is possible?”
Then double check it all. Look online, look up the words you don’t understand, study the drugs you’ve been prescribed, find other patients with the same diagnosis and ask them about their experiences.
And if you learn that your doctor gave it to you straight? Then — and only then — can you form a trusting bond with him/her. Although you’ll want to continue verification with each visit.
And if you find out some of the information was lacking? Then go back to that doctor and ask about the missing pieces. His/her reaction will tell you what you need to do next. You may find out there were good reasons (f’rinstance — you don’t fit the profile for a different treatment). Or you may find out that you need to find another doctor.
Don’t trust blindly just because someone has an M.D. or O.D. after his or her name.
“Trust but Verify” should be the rule for your medical care.
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