Tag Archive: SPTCL

Oct 31 2008

Two Healthy De-Cancered Patients

De-cancered — a good word, isn’t it?  Look at these two faces — they look quite healthy, don’t you think? Well — they most certainly are — quite healthy, despite the chemo both faced prior to proving neither one had the cancer she was diagnosed with. What this photo doesn’t show, is the emotion behind …

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Sep 11 2008

Daniel Was Misdiagnosed with SPTCL, Too

It’s been awhile since I’ve posted.  In that time I’ve been the Gramma-sitter for my two little grandsons while their new baby sister arrived (welcome Kyla Shay!), buried my ex-husband’s cremains (he died last April), spoken to two groups of patients, recorded two radio shows and finished my book proposal. Enough excuses, you say! But …

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Jul 08 2008

Heather, SPTCL, the Next Chapter – Hang on to Your Hat!

[To catch up on previous chapters of Heather’s story, link here (post #1) and here (post#2.)] Heather had her first oncology appointment today.  She was lucky to get in so quickly after her primary care physician ditched her (that still makes me shudder) and she was prepared.  Last week, after my post about her diagnosis …

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Jun 24 2008

Misdiagnosis, a Visit to the Lab and One Last Point

For those of you who have read my misdiagnosis story, you know that one of the ultimate heroes was the pathologist (I’ll call him Dr. H.) who helped me understand how the misdiagnosis happened.  Even though he was one of the doctors responsible for getting it wrong, in the end, he didn’t turn away or …

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Jun 05 2008

SPTCL Rears Its Ugly Head Again!

Almost had a melt-down again last night…. but by the time the evening was over, it was almost a joyful experience! I received a note from a young woman named Heather, as follows: I would like to talk with you. I was diagnosed with SPTCL yesterday. I read your story and I feel exactly the …

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