A blog about patient empowerment, advocacy, safety, consumerism and tools to navigate the dysfunction of American health care.
It’s been awhile since I’ve posted. In that time I’ve been the Gramma-sitter for my two little grandsons while their new baby sister arrived (welcome Kyla Shay!), buried my ex-husband’s cremains (he died last April), spoken to two groups of patients, recorded two radio shows and finished my book proposal. Enough excuses, you say! But [...]
…. and today is his 81st birthday. When people ask me how and why I began doing patient advocacy and empowerment work, I first tell them about my misdiagnosis, and then I tell them it’s because I learned how to be an empowered patient from my dad. Since beginning his battle with cancer in 1986 [...]
In the continuing saga of two “miracle” drugs for those who suffer from non-Hodgkins lymphomas… the fifth most common cancer…. I told you six months ago about Bexxar and Zevalin, the two drugs which can treat non-Hodgkins lymphoma but were not being promoted by oncologists in private practice because they cannot, by law, administer it. [...]
In the past few months, I’ve blogged a few times about my admiration for those strong women on TV who are in the process of, or have transitioned through, chemotherapy. Yesterday Robin Roberts (ABC) shared her chemo hair loss story during Good Morning America. Once again, Robin rose to the occasion, showing incredible strength, and [...]
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