Tag Archive: Cancer

Sep 11 2008

Daniel Was Misdiagnosed with SPTCL, Too

It’s been awhile since I’ve posted.  In that time I’ve been the Gramma-sitter for my two little grandsons while their new baby sister arrived (welcome Kyla Shay!), buried my ex-husband’s cremains (he died last April), spoken to two groups of patients, recorded two radio shows and finished my book proposal. Enough excuses, you say! But …

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Dec 31 2007

Dad — an Empowered Patient Sets a Fine Example

…. and today is his 81st birthday. When people ask me how and why I began doing patient advocacy and empowerment work, I first tell them about my misdiagnosis, and then I tell them it’s because I learned how to be an empowered patient from my dad. Since beginning his battle with cancer in 1986 …

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Dec 13 2007

Yanking the Cure Rug Out From Under Lymphoma Patients

In the continuing saga of two “miracle” drugs for those who suffer from non-Hodgkins lymphomas… the fifth most common cancer…. I told you six months ago about Bexxar and Zevalin, the two drugs which can treat non-Hodgkins lymphoma but were not being promoted by oncologists in private practice because they cannot, by law, administer it. …

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Nov 16 2007

Cancer, Chemo, Emotions: It’s OK Not to be SO OK

In the past few months, I’ve blogged a few times about my admiration for those strong women on TV who are in the process of, or have transitioned through, chemotherapy. Yesterday Robin Roberts (ABC) shared her chemo hair loss story during Good Morning America. Once again, Robin rose to the occasion, showing incredible strength, and …

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Nov 10 2007

From the desk of (11/10/07)…

Some miscellany from the week, not requiring blog posts on their own…. Heard this week from a young man in Central New York State where I live. He’s a young adult cancer survivor and has begun a social network for other young adult cancer survivors, ages 18 to 40: http://yacscny.wordpress.com . If you are a …

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