Elsewhere on the Web : Every Patient’s Advocate

You’ll be amazed at what you can learn from others! From patients who blog, to medical professionals and advocates who share their experiences for your benefit. See what others have to say!

And if you write to them? Please tell them Trisha sent you!

(updated 10/12/08)

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	Every Patient’s Advocate ~ Other Blogs
•	Trisha’s Blog at About.com: http://patients.about.com/b/
•	Trisha’s Blog at Battling for Health: http://advocate.battlingforhealth.com
•	Pre 2007: http://blog.everypatientsadvocate.com
•	Trisha’s Additional Websites: http://trishatorrey.com/epa-websites/
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	Blogs from Patients and Caregivers
•	Sick Girl Speaks Tiffany Christensen-Preiser, a young woman who lives with cystic fibrosis, and a recipient of two lung transplants, shares her words of wisdom with other patients.
•	Sports Hernia Blog Learn about this difficult-to-diagnose problem that often results from a sports injury by John Ditmar.
•	DXUnknown Tammy blogs about her quest for a diagnosis that will actually work for her so she can get the treatment she really needs.
•	Young Adult Cancer Survivors of Central New York Social networking — just getting to know each other — reach out and make friends.
•	Know It Alz No matter what your experience with Alzheimer’s Disease, you’ll be moved — and even entertained — by this blog written by Kathy Hatfield, the daughter of an Alzheimer’s patient.
•	Chronic Pain Information and Musings Sherri Silesky records her experiences as she tries to care for a multitude of health problems, while doing an excellent job of advocating for herself.
•	Jakoter’s Healthier and Wiser Blog Laura Heuer’s experience with navigating the healthcare system for her son was the impetus for creating a series of organizational tools for patients.
•	Brass and Ivory Lisa Emrich blogs about her experiences, learning, life and the dysfunction of American healthcare — oh yes — and she has MS and rheumatoid arthritis, providing her with a unique perspective on all these topics.
•	Health ‘Sass Star Lawrence, a health writer who has had her own run ins in the system, waxes on any number of health related and system related subjects. You’ll enjoy her Health’Sassy humor.
•	Mentor’s OB Tape Victim Thousands of women have had their lives ruined by this tape that was implanted during surgery. Follow this victim’s journey through surgeries, research and litigation.
•	The Assertive Cancer Patient Jeanne Sather has cancer — and an attitude. Every cancer patient — indeed, every patient! — needs this same attitude when approaching healthcare.
•	Undiagnosed Illness Samantha has been undiagnosed for three years. She suffers from pain and bloating around her stomach and gastrointestinal area. She has had to leave work. She runs a forum for others who are undiagnosed. There is probably nothing in this world more frustrating.
•	Second Chance to Live Craig Phillips suffered traumatic brain injury as a youngster, yet has gone on to become an inspiration to others. His belief that, “Our circumstances are not meant to keep us down, but they are meant to build us up!” certainly resonates with me. See if you don’t agree!
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	Blogs from Patient Advocates
•	Blog of a Patient Safety Advocate Ilene Corina, director of PULSE of NY, posts updates on her progress (or lack thereof) in making a dent in the numbers of patient safety violations which cause harm and death.
•	The Health Advocate Students and faculty from the Patient Advocacy program at Sarah Lawrence College provide great food for thought.
•	Honest Medicine Julia Schopick’s catharsis after losing her husband turns out to be beneficial to patients.
•	Patient Destiny Kevin Leonard, PhD presents his approach to patient empowerment through technology.
•	Trusted MD Steve Beller, PhD seems to understand the patient-as-consumer conundrum.
•	Who Moved my Dentures? Musings on Aging Anthony Cirillo talks about challenges facing the elderly.
•	Sickoh: Musings on Healthcare from an Insider Anthony Cirillo tells it like it is.
•	Elder Advocate Blog Jack Halpern keeps us apprised of problems with elder care, elder abuse, nursing homes and more.
•	MRSA Survivor’s Network Jeanine Thomas, a MRSA survivor herself, provides support and information to patients and professionals alike.
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	Blogs for Patients Written by Professionals
•	Your Doctor Said What? Dr. Terrie Wurzbacher exposes the communication gap between doctors and patients, and provides advice on how to overcome it.
•	My Patient Handbook Dr. J.L. Richardson takes a behind the scenes look at medicine. What aren’t we being told? What do doctors “forget” to mention?
•	Cancer Geek Andrew is a radiation technician and has spent his entire career working with patients to give them HOPE. He gives the real inside info on cancer - the objective information we patients don’t always get from our doctors.
•	Doctor and Patient Dr. Aniruddha Malpani shows us that communications between doctors and patients are important no matter where in the world we live. He sponsors the HELP Library — that’s Health Education Library for People — online, free and available to help you, too.
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	Other Patient-Focused Blogs of Interest
•	Amber Smith’s Blog Amber is the Syracuse Post-Standard’s Health and Fitness Editor
•	Universal Health Under the pseudonym N=1, find this commentary on big-picture health news and commentary.
•	Second Opinions Sometimes the answers aren’t cut and dried. Ethics span the difference. Read Peter’s musings on how ethics frame our decision making.
•	Health Issues UnMasked Jacqueline Jones helps us make informed decisions about the issues that surround our health. She “unmasks” the information we need.

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	Eavesdrop on these Blogs Written by Professionals for Other Professionals (filled with nuggets we patients can learn from, too!)
•	Covert Rationing Dr. Rich’s assertions about the state of American Healthcare will trigger some major debate.
•	Musings of a Distractible Mind Dr. Rob Lamberts, a llama lover and southern primary care physician actually “gets” a patient’s point of view. Refreshing, sometimes funny, and a good reminder that our healthcare practitioners are human, too.
•	Dr. Tim’s Different Way Tim Langley, a chiropractor, sees his medical world in a different light from most.
•	Align Map Blog Dr. Allan Showalter is emphatic about the effects of patient compliance on good medical outcomes. (He’s right!)
•	Kevin MD Dr. Kevin has made a career from blogging. I’m not sure when he sees patients! He highlights the problems with communications between doctors and patients and even when he makes me grit my teeth, I have to appreciate his point of view.
•	The Health Care Blog …bills itself as “Everything you always wanted to know about the Health Care system. But were afraid to ask.” And yes, that’s exactly what it is.
•	Health Beat Maggie Mahar, esteemed observer and writer about healthcare and its relation to money, provides thought-provoking commentary on the dysfunction of American healthcare.