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	<title>Comments for Every Patient&#039;s Advocate</title>
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	<link>http://trishatorrey.com</link>
	<description>A blog about patient empowerment, advocacy, safety, consumerism and tools to navigate the dysfunction of American health care.</description>
	<lastBuildDate>Wed, 10 Feb 2010 04:13:27 -0600</lastBuildDate>
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		<title>Comment on The New Healthcare Reform &#8211; Is Patient Reform by Sherlock Holmes, Consulting Detective &#171; Adventures of a Funky Heart!</title>
		<link>http://trishatorrey.com/2010/02/06/the-new-healthcare-reform-is-patient-reform/comment-page-1/#comment-32528</link>
		<dc:creator>Sherlock Holmes, Consulting Detective &#171; Adventures of a Funky Heart!</dc:creator>
		<pubDate>Wed, 10 Feb 2010 04:13:27 +0000</pubDate>
		<guid isPermaLink="false">http://trishatorrey.com/?p=1220#comment-32528</guid>
		<description>[...] we have to become what Trisha calls &#8220;Empowered patients.&#8221; Unusually, she&#8217;s not a big fan of her own word &#8211; &#8220;Empowered&#8221; tends [...]</description>
		<content:encoded><![CDATA[<p>[...] we have to become what Trisha calls &#8220;Empowered patients.&#8221; Unusually, she&#8217;s not a big fan of her own word &#8211; &#8220;Empowered&#8221; tends [...]</p>
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		<title>Comment on Why Twitter Doesn&#8217;t Work by Char Brooks</title>
		<link>http://trishatorrey.com/2009/05/14/why-twitter-doesnt-work/comment-page-2/#comment-32527</link>
		<dc:creator>Char Brooks</dc:creator>
		<pubDate>Mon, 08 Feb 2010 22:45:09 +0000</pubDate>
		<guid isPermaLink="false">http://trishatorrey.com/?p=930#comment-32527</guid>
		<description>I have had the same issues with Twitter that Lisa has had.  I have asked questions, felt like a ghost in the middle of conversations that I don&#039;t have time for (as you said Trisha), been a good listener and responsive and not gotten feedback.

I&#039;ve read Twitter power, followed his steps for checking in and finding thought leaders and still haven&#039;t figured out a way to make this a good use of my time and enjoyable for me. 

I&#039;m always willing to learn new ways.  I have a book coming out shortly and am a member of several two private forums and others have offered to &quot;tweet it up&quot; for me.  That&#039;s really supportive and I appreciate that.

I hear you Trisha when you say it may be that I&#039;m following the wrong people or too many people if this is the case.  I follow many of the same people you do, I suspect, because our fields of interest are similar.  I welcome any advice you or others have on this.  

Thanks.</description>
		<content:encoded><![CDATA[<p>I have had the same issues with Twitter that Lisa has had.  I have asked questions, felt like a ghost in the middle of conversations that I don&#8217;t have time for (as you said Trisha), been a good listener and responsive and not gotten feedback.</p>
<p>I&#8217;ve read Twitter power, followed his steps for checking in and finding thought leaders and still haven&#8217;t figured out a way to make this a good use of my time and enjoyable for me. </p>
<p>I&#8217;m always willing to learn new ways.  I have a book coming out shortly and am a member of several two private forums and others have offered to &#8220;tweet it up&#8221; for me.  That&#8217;s really supportive and I appreciate that.</p>
<p>I hear you Trisha when you say it may be that I&#8217;m following the wrong people or too many people if this is the case.  I follow many of the same people you do, I suspect, because our fields of interest are similar.  I welcome any advice you or others have on this.  </p>
<p>Thanks.</p>
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		<title>Comment on The New Healthcare Reform &#8211; Is Patient Reform by Michael Kirsch, M.D.</title>
		<link>http://trishatorrey.com/2010/02/06/the-new-healthcare-reform-is-patient-reform/comment-page-1/#comment-32523</link>
		<dc:creator>Michael Kirsch, M.D.</dc:creator>
		<pubDate>Sat, 06 Feb 2010 18:46:28 +0000</pubDate>
		<guid isPermaLink="false">http://trishatorrey.com/?p=1220#comment-32523</guid>
		<description>Make it a decade of empowerment, not just a year. (Lifetime?)  Agree that one of the most critical assets a patient and family brings to the table is an informed and spirited advocacy of his own health. Bring along some skepticism also.</description>
		<content:encoded><![CDATA[<p>Make it a decade of empowerment, not just a year. (Lifetime?)  Agree that one of the most critical assets a patient and family brings to the table is an informed and spirited advocacy of his own health. Bring along some skepticism also.</p>
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		<title>Comment on Trisha&#8217;s Misdiagnosis Story by Misdiagnosis &#171; Woman to Woman Childbirth Education</title>
		<link>http://trishatorrey.com/who-is-trisha/misdiagnosis/comment-page-5/#comment-32496</link>
		<dc:creator>Misdiagnosis &#171; Woman to Woman Childbirth Education</dc:creator>
		<pubDate>Tue, 26 Jan 2010 02:23:24 +0000</pubDate>
		<guid isPermaLink="false">http://trishatorrey.com/?page_id=9#comment-32496</guid>
		<description>[...]  Posted on January 26, 2010 by Kathy   This has nothing to do with birth, but you need to read this powerful story of a woman who was diagnosed with a rare, aggressive, and lethal form of cancer, [...]</description>
		<content:encoded><![CDATA[<p>[...]  Posted on January 26, 2010 by Kathy   This has nothing to do with birth, but you need to read this powerful story of a woman who was diagnosed with a rare, aggressive, and lethal form of cancer, [...]</p>
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		<title>Comment on Trisha&#8217;s Misdiagnosis Story by Science &#38; Sensibility &#187; You Bet Your Life (and your baby&#8217;s life too?)</title>
		<link>http://trishatorrey.com/who-is-trisha/misdiagnosis/comment-page-4/#comment-32492</link>
		<dc:creator>Science &#38; Sensibility &#187; You Bet Your Life (and your baby&#8217;s life too?)</dc:creator>
		<pubDate>Mon, 25 Jan 2010 02:50:42 +0000</pubDate>
		<guid isPermaLink="false">http://trishatorrey.com/?page_id=9#comment-32492</guid>
		<description>[...] amazing patient advocates. Trisha Torrey (@TrishaTorrey on Twitter)  is one of these. After being misdiagnosed with a rare type of terminal cancer and coming close to risking her life to accept treatment she did not need, she discovered that many [...]</description>
		<content:encoded><![CDATA[<p>[...] amazing patient advocates. Trisha Torrey (@TrishaTorrey on Twitter)  is one of these. After being misdiagnosed with a rare type of terminal cancer and coming close to risking her life to accept treatment she did not need, she discovered that many [...]</p>
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		<title>Comment on Autism and MMR Link, Parents Fooled, Follow the Money, Then LISTEN by julie petitt</title>
		<link>http://trishatorrey.com/2009/08/31/autism-and-mmr-link-parents-fooled-follow-the-money-then-listen/comment-page-2/#comment-32474</link>
		<dc:creator>julie petitt</dc:creator>
		<pubDate>Tue, 19 Jan 2010 02:23:11 +0000</pubDate>
		<guid isPermaLink="false">http://trishatorrey.com/?p=1067#comment-32474</guid>
		<description>How about this parents, less worry less about what caused it for our children and more about how to help them. Nothing changes the situation we are in no matter who or what is to blame. Sure, you can sit there and say well, I don&#039;t want it to happen to anyone else, but ultimately, you are, we all are first worried about our own. So lets all get together and hel our children the best we can with what we have! Then we all can say... &quot;WE BEAT YOU!&quot; That.... is better than anything else for all of us. Not the money from the companies we sue... but by the learning we give our children. THAT.. is first with me.</description>
		<content:encoded><![CDATA[<p>How about this parents, less worry less about what caused it for our children and more about how to help them. Nothing changes the situation we are in no matter who or what is to blame. Sure, you can sit there and say well, I don&#8217;t want it to happen to anyone else, but ultimately, you are, we all are first worried about our own. So lets all get together and hel our children the best we can with what we have! Then we all can say&#8230; &#8220;WE BEAT YOU!&#8221; That&#8230;. is better than anything else for all of us. Not the money from the companies we sue&#8230; but by the learning we give our children. THAT.. is first with me.</p>
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		<title>Comment on The Bully Psychiatrist from Naples, FL &#8211; Follow Up and Lessons Learned by BOBBY</title>
		<link>http://trishatorrey.com/2008/04/28/the-bully-psychiatrist-from-naples-fl-follow-up-and-lessons-learned/comment-page-1/#comment-32458</link>
		<dc:creator>BOBBY</dc:creator>
		<pubDate>Tue, 12 Jan 2010 15:16:04 +0000</pubDate>
		<guid isPermaLink="false">http://trishatorrey.com/?p=419#comment-32458</guid>
		<description>I understand where you are coming from. I have had experiences with 2 lunatic psychiatrists in this town and I&#039;ve only lived here 14 months. I just go to get meds for my chemical imbalance and disability. Good for you exposing these lunatic tweakers who call themselves M.D.&#039;s!</description>
		<content:encoded><![CDATA[<p>I understand where you are coming from. I have had experiences with 2 lunatic psychiatrists in this town and I&#8217;ve only lived here 14 months. I just go to get meds for my chemical imbalance and disability. Good for you exposing these lunatic tweakers who call themselves M.D.&#8217;s!</p>
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		<title>Comment on Conspiracy Theorists and Flu Vaccines &#8211; Pick Another Battle Please by Pamela</title>
		<link>http://trishatorrey.com/2010/01/07/conspiracy-theorists-and-flu-vaccines-pick-another-battle-please/comment-page-1/#comment-32455</link>
		<dc:creator>Pamela</dc:creator>
		<pubDate>Tue, 12 Jan 2010 02:45:55 +0000</pubDate>
		<guid isPermaLink="false">http://trishatorrey.com/?p=1213#comment-32455</guid>
		<description>From Fox News

H1N1 Flu Is a False Pandemic, Health Expert Claims 

From the article

&quot;A leading health expert said the swine flu scare was a &quot;false pandemic&quot; led by drug companies that stood to make billions from vaccines, The Sun reported Monday.

Wolfgang Wodarg, head of health at the Council of Europe, claimed major firms organized a &quot;campaign of panic&quot; to put pressure on the World Health Organization (WHO) to declare a pandemic...

&quot;But there is worse to come. The vaccine developed by Novartis was produced in a bioreactor from cancerous cells, a technique that had never been used until now.

&quot;This was not necessary. It has also led to a considerable mismanagement of public money&quot;</description>
		<content:encoded><![CDATA[<p>From Fox News</p>
<p>H1N1 Flu Is a False Pandemic, Health Expert Claims </p>
<p>From the article</p>
<p>&#8220;A leading health expert said the swine flu scare was a &#8220;false pandemic&#8221; led by drug companies that stood to make billions from vaccines, The Sun reported Monday.</p>
<p>Wolfgang Wodarg, head of health at the Council of Europe, claimed major firms organized a &#8220;campaign of panic&#8221; to put pressure on the World Health Organization (WHO) to declare a pandemic&#8230;</p>
<p>&#8220;But there is worse to come. The vaccine developed by Novartis was produced in a bioreactor from cancerous cells, a technique that had never been used until now.</p>
<p>&#8220;This was not necessary. It has also led to a considerable mismanagement of public money&#8221;</p>
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		<title>Comment on Conspiracy Theorists and Flu Vaccines &#8211; Pick Another Battle Please by Pamela</title>
		<link>http://trishatorrey.com/2010/01/07/conspiracy-theorists-and-flu-vaccines-pick-another-battle-please/comment-page-1/#comment-32436</link>
		<dc:creator>Pamela</dc:creator>
		<pubDate>Fri, 08 Jan 2010 15:16:59 +0000</pubDate>
		<guid isPermaLink="false">http://trishatorrey.com/?p=1213#comment-32436</guid>
		<description>Trisha

I just read a bit of your story about how you came to advocacy work and I think you are someone that so many parents, who watched theirs children regress into autism in direct correlation to a vaccine or a series of vaccines in one day, can relate to in terms of being &quot;led&quot; into advocacy work.

 We are not conspiracy theorists, for the most part. Of course it is an issue that draws that element, unfortunately.  This is a debate based in fact. Facts that have absolutely nothing to do with the conspiracy theories you have listed above. 

 In the past two years many in government and medicine have expressed the very concerns regarding vaccines that we have been expressing for years. 
I truly hope that you will read the sources that I provided in my previous post and also David Kirby&#039;s book &quot;Evidence of Harm&quot;. It is a shocking story and a great read in terms of parents love leading them into advocacy for the sake of all children. 

It really looks like you are doing some great work through this blog and I hope you will consider this issue, not from the perspective of the conspiracy theorists, but from the perspective of intelligent, reasonable parents who support advocacy groups like SafeMinds, National Autism Association and Generation Rescue. These groups are in a very different camp than those who push the conspiracy&#039;s you have listed above and many in government and science share the same concern as these parents. 

Again here is a link to a source that includes citations http://safeminds.org/news/pressroom/what-causes-autism-has-science-ruled-out-vaccines.html</description>
		<content:encoded><![CDATA[<p>Trisha</p>
<p>I just read a bit of your story about how you came to advocacy work and I think you are someone that so many parents, who watched theirs children regress into autism in direct correlation to a vaccine or a series of vaccines in one day, can relate to in terms of being &#8220;led&#8221; into advocacy work.</p>
<p> We are not conspiracy theorists, for the most part. Of course it is an issue that draws that element, unfortunately.  This is a debate based in fact. Facts that have absolutely nothing to do with the conspiracy theories you have listed above. </p>
<p> In the past two years many in government and medicine have expressed the very concerns regarding vaccines that we have been expressing for years.<br />
I truly hope that you will read the sources that I provided in my previous post and also David Kirby&#8217;s book &#8220;Evidence of Harm&#8221;. It is a shocking story and a great read in terms of parents love leading them into advocacy for the sake of all children. </p>
<p>It really looks like you are doing some great work through this blog and I hope you will consider this issue, not from the perspective of the conspiracy theorists, but from the perspective of intelligent, reasonable parents who support advocacy groups like SafeMinds, National Autism Association and Generation Rescue. These groups are in a very different camp than those who push the conspiracy&#8217;s you have listed above and many in government and science share the same concern as these parents. </p>
<p>Again here is a link to a source that includes citations <a href="http://safeminds.org/news/pressroom/what-causes-autism-has-science-ruled-out-vaccines.html" rel="nofollow">http://safeminds.org/news/pressroom/what-causes-autism-has-science-ruled-out-vaccines.html</a></p>
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		<title>Comment on Conspiracy Theorists and Flu Vaccines &#8211; Pick Another Battle Please by Michael Spencer</title>
		<link>http://trishatorrey.com/2010/01/07/conspiracy-theorists-and-flu-vaccines-pick-another-battle-please/comment-page-1/#comment-32432</link>
		<dc:creator>Michael Spencer</dc:creator>
		<pubDate>Fri, 08 Jan 2010 14:13:20 +0000</pubDate>
		<guid isPermaLink="false">http://trishatorrey.com/?p=1213#comment-32432</guid>
		<description>Really?  You&#039;ve never passed a cold or virus of any kind to anyone...ever?  I know, I know, you didn&#039;t really say that, but the last time I checked, this was still a free country where we get to make our own informed decisions about our health care. My decision, not anyone elses. Just like I decide to eat whatever I like... despite all the people with opinions and research to back up why what they eat is better. I can also choose to live where I like. But clearly there are places &quot;the experts&quot;  say are better or worse than others based on any number of criteria and facts. At the end of the day, we all have to live with our choices. Welcome to America.  My doctor recently pointed out to me that he &quot;practices&quot; medicine.  It&#039;s a rehearsal. An exploration. We all try our best.</description>
		<content:encoded><![CDATA[<p>Really?  You&#8217;ve never passed a cold or virus of any kind to anyone&#8230;ever?  I know, I know, you didn&#8217;t really say that, but the last time I checked, this was still a free country where we get to make our own informed decisions about our health care. My decision, not anyone elses. Just like I decide to eat whatever I like&#8230; despite all the people with opinions and research to back up why what they eat is better. I can also choose to live where I like. But clearly there are places &#8220;the experts&#8221;  say are better or worse than others based on any number of criteria and facts. At the end of the day, we all have to live with our choices. Welcome to America.  My doctor recently pointed out to me that he &#8220;practices&#8221; medicine.  It&#8217;s a rehearsal. An exploration. We all try our best.</p>
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