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	<title>Every Patient&#039;s Advocate &#187; SPTCL</title>
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	<link>http://trishatorrey.com</link>
	<description>A blog about patient empowerment, advocacy, safety, consumerism and tools to navigate the dysfunction of American health care.</description>
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		<title>An End Of the Year Revisit &#8212; SPTCL and Misdiagnosis</title>
		<link>http://trishatorrey.com/2008/12/29/an-end-of-the-year-revisit-sptcl-and-misdiagnosis/</link>
		<comments>http://trishatorrey.com/2008/12/29/an-end-of-the-year-revisit-sptcl-and-misdiagnosis/#comments</comments>
		<pubDate>Tue, 30 Dec 2008 01:05:19 +0000</pubDate>
		<dc:creator>Trisha Torrey</dc:creator>
				<category><![CDATA[Cancer]]></category>
		<category><![CDATA[Death]]></category>
		<category><![CDATA[Health]]></category>
		<category><![CDATA[Healthcare Quality]]></category>
		<category><![CDATA[Medical]]></category>
		<category><![CDATA[Medical Commentary]]></category>
		<category><![CDATA[Medical Errors / Mistakes / Misdiagnosis]]></category>
		<category><![CDATA[Medical News]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[Patient Empowerment]]></category>
		<category><![CDATA[Patients]]></category>
		<category><![CDATA[Patientude]]></category>
		<category><![CDATA[Self Help]]></category>
		<category><![CDATA[SPTCL]]></category>

		<guid isPermaLink="false">http://trishatorrey.com/?p=693</guid>
		<description><![CDATA[If you&#8217;ve read this blog for awhile, then you know 2008 was the year of SPTCL misdiagnoses. SPTCL, subcutaneous panniculitis-like T-cell lymphoma, was the rare and deadly lymphoma that kick-started my work as Every Patient&#8217;s Advocate.  I was told I had it.  In fact, I was told by two labs and an oncologist that I [...]]]></description>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Two Healthy De-Cancered Patients</title>
		<link>http://trishatorrey.com/2008/10/31/two-healthy-de-cancered-patients/</link>
		<comments>http://trishatorrey.com/2008/10/31/two-healthy-de-cancered-patients/#comments</comments>
		<pubDate>Fri, 31 Oct 2008 16:45:58 +0000</pubDate>
		<dc:creator>Trisha Torrey</dc:creator>
				<category><![CDATA[Cancer]]></category>
		<category><![CDATA[Guerrilla Patient]]></category>
		<category><![CDATA[Health]]></category>
		<category><![CDATA[Healthcare Quality]]></category>
		<category><![CDATA[Medical Errors / Mistakes / Misdiagnosis]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[Patient Empowerment]]></category>
		<category><![CDATA[Patient Safety]]></category>
		<category><![CDATA[Patient Tools]]></category>
		<category><![CDATA[Patients]]></category>
		<category><![CDATA[SPTCL]]></category>
		<category><![CDATA[las vegas]]></category>
		<category><![CDATA[misdiagnosis]]></category>

		<guid isPermaLink="false">http://trishatorrey.com/?p=627</guid>
		<description><![CDATA[De-cancered &#8212; a good word, isn&#8217;t it?  Look at these two faces &#8212; they look quite healthy, don&#8217;t you think? Well &#8212; they most certainly are &#8212; quite healthy, despite the chemo both faced prior to proving neither one had the cancer she was diagnosed with. What this photo doesn&#8217;t show, is the emotion behind [...]]]></description>
		<wfw:commentRss>http://trishatorrey.com/2008/10/31/two-healthy-de-cancered-patients/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>Daniel Was Misdiagnosed with SPTCL, Too</title>
		<link>http://trishatorrey.com/2008/09/11/daniel-was-misdiagnosed-with-sptcl-too/</link>
		<comments>http://trishatorrey.com/2008/09/11/daniel-was-misdiagnosed-with-sptcl-too/#comments</comments>
		<pubDate>Thu, 11 Sep 2008 17:38:46 +0000</pubDate>
		<dc:creator>Trisha Torrey</dc:creator>
				<category><![CDATA[Cancer]]></category>
		<category><![CDATA[Death]]></category>
		<category><![CDATA[Health]]></category>
		<category><![CDATA[Healthcare Quality]]></category>
		<category><![CDATA[Hospitals]]></category>
		<category><![CDATA[Medical]]></category>
		<category><![CDATA[Medical Commentary]]></category>
		<category><![CDATA[Medical Errors / Mistakes / Misdiagnosis]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[Patient Empowerment]]></category>
		<category><![CDATA[Patient Tools]]></category>
		<category><![CDATA[Patients]]></category>
		<category><![CDATA[Self Help]]></category>
		<category><![CDATA[Spirituality]]></category>
		<category><![CDATA[SPTCL]]></category>
		<category><![CDATA[lymphoma]]></category>
		<category><![CDATA[misdiagnosis]]></category>

		<guid isPermaLink="false">http://trishatorrey.com/?p=566</guid>
		<description><![CDATA[It&#8217;s been awhile since I&#8217;ve posted.  In that time I&#8217;ve been the Gramma-sitter for my two little grandsons while their new baby sister arrived (welcome Kyla Shay!), buried my ex-husband&#8217;s cremains (he died last April), spoken to two groups of patients, recorded two radio shows and finished my book proposal. Enough excuses, you say! But [...]]]></description>
		<wfw:commentRss>http://trishatorrey.com/2008/09/11/daniel-was-misdiagnosed-with-sptcl-too/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Daniel&#8217;s SPTCL Diagnosis is Suspect, Too</title>
		<link>http://trishatorrey.com/2008/08/25/daniels-sptcl-diagnosis-is-suspect-too/</link>
		<comments>http://trishatorrey.com/2008/08/25/daniels-sptcl-diagnosis-is-suspect-too/#comments</comments>
		<pubDate>Mon, 25 Aug 2008 12:50:55 +0000</pubDate>
		<dc:creator>Trisha Torrey</dc:creator>
				<category><![CDATA[Blamers and Fixers]]></category>
		<category><![CDATA[Cancer]]></category>
		<category><![CDATA[General Commentary]]></category>
		<category><![CDATA[Health]]></category>
		<category><![CDATA[Health /Medical Consumerism]]></category>
		<category><![CDATA[Healthcare Quality]]></category>
		<category><![CDATA[Medical]]></category>
		<category><![CDATA[Medical Commentary]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[Patient Empowerment]]></category>
		<category><![CDATA[Patient Tools]]></category>
		<category><![CDATA[Patients]]></category>
		<category><![CDATA[Self Help]]></category>
		<category><![CDATA[SPTCL]]></category>
		<category><![CDATA[SPTCL stories]]></category>
		<category><![CDATA[support groups]]></category>

		<guid isPermaLink="false">http://trishatorrey.com/?p=556</guid>
		<description><![CDATA[When I was (mis)diagnosed with SPTCL (subcutaneous panniculitis-like T-cell lyphoma) in 2004, I was handed a book, published in July 2004, that stated that &#8220;fewer than 100 cases have been reported in the last decade.&#8221; Yeah &#8212; really, really rare. Because that&#8217;s a book used by oncologists all over the world. Then, from Fall 2004 [...]]]></description>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Heather, SPTCL, the Next Chapter &#8211; Hang on to Your Hat!</title>
		<link>http://trishatorrey.com/2008/07/08/heather-sptcl-the-next-chapter-hang-on-to-your-hat/</link>
		<comments>http://trishatorrey.com/2008/07/08/heather-sptcl-the-next-chapter-hang-on-to-your-hat/#comments</comments>
		<pubDate>Tue, 08 Jul 2008 23:58:11 +0000</pubDate>
		<dc:creator>Trisha Torrey</dc:creator>
				<category><![CDATA[Cancer]]></category>
		<category><![CDATA[Doctor Communication]]></category>
		<category><![CDATA[Health]]></category>
		<category><![CDATA[Healthcare Quality]]></category>
		<category><![CDATA[Medical]]></category>
		<category><![CDATA[Medical Commentary]]></category>
		<category><![CDATA[Medical Errors / Mistakes / Misdiagnosis]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[Patient Empowerment]]></category>
		<category><![CDATA[Patients]]></category>
		<category><![CDATA[Patientude]]></category>
		<category><![CDATA[SPTCL]]></category>
		<category><![CDATA[cutaneous lymphoma]]></category>
		<category><![CDATA[Heather]]></category>
		<category><![CDATA[oncology]]></category>

		<guid isPermaLink="false">http://trishatorrey.com/?p=446</guid>
		<description><![CDATA[[To catch up on previous chapters of Heather's story, link here (post #1) and here (post#2.)] Heather had her first oncology appointment today.  She was lucky to get in so quickly after her primary care physician ditched her (that still makes me shudder) and she was prepared.  Last week, after my post about her diagnosis [...]]]></description>
		<wfw:commentRss>http://trishatorrey.com/2008/07/08/heather-sptcl-the-next-chapter-hang-on-to-your-hat/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
		</item>
		<item>
		<title>Heather, SPTCL, Another Misdiagnosis and Doctors Who Should Not Practice Medicine</title>
		<link>http://trishatorrey.com/2008/07/02/heather-sptcl-another-misdiagnosis-and-doctors-who-should-not-practice-medicine/</link>
		<comments>http://trishatorrey.com/2008/07/02/heather-sptcl-another-misdiagnosis-and-doctors-who-should-not-practice-medicine/#comments</comments>
		<pubDate>Wed, 02 Jul 2008 20:20:28 +0000</pubDate>
		<dc:creator>Trisha Torrey</dc:creator>
				<category><![CDATA[Cancer]]></category>
		<category><![CDATA[Doctor Communication]]></category>
		<category><![CDATA[Health /Medical Consumerism]]></category>
		<category><![CDATA[Healthcare Quality]]></category>
		<category><![CDATA[Medical]]></category>
		<category><![CDATA[Medical Commentary]]></category>
		<category><![CDATA[Medical Errors / Mistakes / Misdiagnosis]]></category>
		<category><![CDATA[Medical Records]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[Patient Empowerment]]></category>
		<category><![CDATA[Patient Safety]]></category>
		<category><![CDATA[Patient Tools]]></category>
		<category><![CDATA[Patients]]></category>
		<category><![CDATA[Patientude]]></category>
		<category><![CDATA[Spirituality]]></category>
		<category><![CDATA[SPTCL]]></category>
		<category><![CDATA[CGD-TCL]]></category>
		<category><![CDATA[Dr. Jaffe]]></category>
		<category><![CDATA[lymphoma]]></category>
		<category><![CDATA[NIH]]></category>

		<guid isPermaLink="false">http://trishatorrey.com/?p=444</guid>
		<description><![CDATA[Here&#8217;s the good news:  Heather does not have SPTCL. Here&#8217;s the bad news:  Heather does have another type of T-cell lymphoma called CGD-TCL, cutaneous gamma-delta t-cell lymphoma.  Also written with Greek letters:  cutaneous ?/? T-cell lymphoma To say that both Heather and I were shocked is an understatement.  If you read my post a few [...]]]></description>
		<wfw:commentRss>http://trishatorrey.com/2008/07/02/heather-sptcl-another-misdiagnosis-and-doctors-who-should-not-practice-medicine/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Misdiagnosis, a Visit to the Lab and One Last Point</title>
		<link>http://trishatorrey.com/2008/06/24/misdiagnosis-a-visit-to-the-lab-and-one-last-point/</link>
		<comments>http://trishatorrey.com/2008/06/24/misdiagnosis-a-visit-to-the-lab-and-one-last-point/#comments</comments>
		<pubDate>Tue, 24 Jun 2008 12:12:53 +0000</pubDate>
		<dc:creator>Trisha Torrey</dc:creator>
				<category><![CDATA[Death]]></category>
		<category><![CDATA[Health]]></category>
		<category><![CDATA[Health /Medical Consumerism]]></category>
		<category><![CDATA[Hospitals]]></category>
		<category><![CDATA[Medical]]></category>
		<category><![CDATA[Medical and Research Studies]]></category>
		<category><![CDATA[Medical Commentary]]></category>
		<category><![CDATA[Medical Errors / Mistakes / Misdiagnosis]]></category>
		<category><![CDATA[New Ideas in Medicine]]></category>
		<category><![CDATA[Patient Empowerment]]></category>
		<category><![CDATA[Patient Tools]]></category>
		<category><![CDATA[Patients]]></category>
		<category><![CDATA[Patientude]]></category>
		<category><![CDATA[Privacy and Security]]></category>
		<category><![CDATA[SPTCL]]></category>
		<category><![CDATA[apology]]></category>
		<category><![CDATA[medical lab]]></category>
		<category><![CDATA[misdiagnosis]]></category>

		<guid isPermaLink="false">http://trishatorrey.com/?p=442</guid>
		<description><![CDATA[For those of you who have read my misdiagnosis story, you know that one of the ultimate heroes was the pathologist (I&#8217;ll call him Dr. H.) who helped me understand how the misdiagnosis happened.  Even though he was one of the doctors responsible for getting it wrong, in the end, he didn&#8217;t turn away or [...]]]></description>
		<wfw:commentRss>http://trishatorrey.com/2008/06/24/misdiagnosis-a-visit-to-the-lab-and-one-last-point/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>SPTCL Rears Its Ugly Head Again!</title>
		<link>http://trishatorrey.com/2008/06/05/sptcl-rears-its-ugly-head-again/</link>
		<comments>http://trishatorrey.com/2008/06/05/sptcl-rears-its-ugly-head-again/#comments</comments>
		<pubDate>Thu, 05 Jun 2008 10:53:35 +0000</pubDate>
		<dc:creator>Trisha Torrey</dc:creator>
				<category><![CDATA[Cancer]]></category>
		<category><![CDATA[Health]]></category>
		<category><![CDATA[Health /Medical Consumerism]]></category>
		<category><![CDATA[Healthcare Quality]]></category>
		<category><![CDATA[Medical]]></category>
		<category><![CDATA[Medical Commentary]]></category>
		<category><![CDATA[Patient Empowerment]]></category>
		<category><![CDATA[Patient Tools]]></category>
		<category><![CDATA[Patientude]]></category>
		<category><![CDATA[SPTCL]]></category>
		<category><![CDATA[Dr. Elaine Jaffe]]></category>
		<category><![CDATA[subcutaneous panniculitis like t-cell lymphoma]]></category>

		<guid isPermaLink="false">http://trishatorrey.com/?p=432</guid>
		<description><![CDATA[Almost had a melt-down again last night&#8230;. but by the time the evening was over, it was almost a joyful experience! I received a note from a young woman named Heather, as follows: I would like to talk with you. I was diagnosed with SPTCL yesterday. I read your story and I feel exactly the [...]]]></description>
		<wfw:commentRss>http://trishatorrey.com/2008/06/05/sptcl-rears-its-ugly-head-again/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>SPTCL and Post-Traumatic Meltdown</title>
		<link>http://trishatorrey.com/2007/06/22/sptcl-and-post-traumatic-meltdown/</link>
		<comments>http://trishatorrey.com/2007/06/22/sptcl-and-post-traumatic-meltdown/#comments</comments>
		<pubDate>Fri, 22 Jun 2007 12:34:44 +0000</pubDate>
		<dc:creator>Trisha Torrey</dc:creator>
				<category><![CDATA[Health /Medical Consumerism]]></category>
		<category><![CDATA[Healthcare Quality]]></category>
		<category><![CDATA[Medical Commentary]]></category>
		<category><![CDATA[Medical Errors / Mistakes / Misdiagnosis]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[Patient Empowerment]]></category>
		<category><![CDATA[Patient Safety]]></category>
		<category><![CDATA[Patient Tools]]></category>
		<category><![CDATA[Patients]]></category>
		<category><![CDATA[Self Help]]></category>
		<category><![CDATA[SPTCL]]></category>
		<category><![CDATA[137]]></category>
		<category><![CDATA[225]]></category>
		<category><![CDATA[Intuition]]></category>
		<category><![CDATA[Spirituality]]></category>
		<category><![CDATA[subcutaneous panniculitis like t-cell lymphoma]]></category>

		<guid isPermaLink="false">http://trishatorrey.com/?p=269</guid>
		<description><![CDATA[It comes on in a rush, and it makes me feel like a Sweet-tart &#8212; you know, one of those candies that you bite into, it grabs the sour corners of your tongue, and it just dissolves&#8230;. The overwhelming dread and tears begin to descend, sometimes I just collapse. It takes a good cry to [...]]]></description>
		<wfw:commentRss>http://trishatorrey.com/2007/06/22/sptcl-and-post-traumatic-meltdown/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
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