Prevention : Every Patient’s Advocate

Patient Safety Day, “Independence” Takes on a New Meaning

No comments yet! »

Sometimes the best way to accomplish the most is to get good heads together for conversation, brainstorming and more.  Some of those names we hear over and over again in the patient safety world were able to join forces at a picnic in Aiken, South Carolina, on July 4th.

Organized by Dianne Parker, the group was able to discuss safety initiatives and ideas, and remember those who have been lost due to medical errors.

The goal?  To make this world “independent” of patient safety violations — to save lives and stop the loss of them to medical errors.

Here are some of the dedicated folks who were able to make the picnic, all standing in front of the Consumer’s Union Cover America Tour Big Blue Bus:

Left to right: Curtis & Lisa Lindell, author of 108 Days, Houston, TX.
Helen Haskell, President, Mothers Against Medical Error, South Carolina
Kim Sandstrom, Mothers Against Medical Error, Ocala Florida
Dianne Parker, President, Patient Safety Advocates, Aiken, South Carolina
Lorin & Christine Jones, www.pamsjourney.org, Farmington, New Mexico
Dr. Ira Williams, author of First Do No Harm, Greenville, South Carolina

Missing from the photo is Sanjaya Kumar, MD, author of Fatal Care who was also in attendance.

………………………………..

Thanks to Lisa Lindell for sending the photo, and to all who attended for taking one more step toward awareness and solutions.  You are all fixers — and I appreciate that!

(Wish I could have joined you!)

Want more tools and commentary for sharp patients?
Sign up for Every Patient’s Advocate email tips
- - - - - - - - - - -
Join Trisha in the Patient Empowerment Forum at About.com
- - - - - - - - - - -
Or link here to empower yourself at EveryPatientsAdvocate.com

What Tim Russert Has Taught Us About Healthcare and a Healthy Life

No comments yet! »

Tim RussertLike so many of you, my heart breaks at the loss of Tim Russert. On so many levels, we felt a kinship to him. Anyone who has tried to understand American politics or politicians during the past 20 years has gotten to know Tim Russert, as if he were the trusted friend and neighbor who could help us “get” it.

Our world is now less because we don’t have Tim. And It occurs to me that there are some final lessons we can learn about healthcare from him. Just as he helped us understand politics, he can help us better understand healthcare and a healthy life — as follows:

It turns out that Tim was quite watchful over his heart disease. He had been diagnosed, and was under a doctor’s care. He took his meds, he watched his diet, he exercised, and he got his regular check ups. He was a vigilant patient. Our lesson: being a vigilant patient, doing our best to prevent problems, following all the rules for good health, doesn’t mean life won’t still be too short.

We’ve learned that no matter how many studies exist, no matter what tests can be run, no matter what drugs are available, no matter how well we manage our diets and exercise, there are aspects of a body’s function that just can’t be controlled. Our lesson: Medical science still has a very long way to go.

We’ve learned that good quality medical care doesn’t always translate to a longer healthier life. Yes, I think that over a population of people, better care equals a longer life — BUT — Tim had the best care available in this country, and he died way too young, in his prime. Perhaps without that good care, he would have died even younger? We’ll never know… Our lesson: having good medical care is a plus, but it’s only one tool in determining longevity.

We’ve learned that even the best medical care can’t make up for 1) bad genes or 2) bad choices or 3) extreme stress — any or all. What we don’t know is whether Tim was a smoker when he was younger, or whether he survived on hamburgers and greasy pizza before he turned 55. We don’t know if there was heart disease in his family. We can assume his life was quite stressful. Our lesson: we can’t expect medical miracles to overcome bad genes, heavy stress or bad choices.

Tim taught us that we just never know when our final moment will be — and we need to be prepared. His family was the most important part of his life. He left this world making sure they knew exactly how much he loved them — his dad, his wife and his son. Our lesson: At any moment in life, be sure those you love know just how much you love them. It’s important for your own health, and their health and well-being, too.

Tim had very strong spiritual beliefs, and surrounded himself with spiritual people. In the difficult times, believing in a higher being can be very comforting. His family will find some comfort in the coming years based on that faith, too. Our lesson: Life can be enhanced, health can be supported, and comfort can be found through spiritual beliefs.

Finally, we’ve learned from Tim that one’s legacy is about character and a zestful approach to life. We have to believe that in that instant the heart attack struck, when his life passed before him, he knew it was all good, and he would not have changed one moment of who he was, who he loved, what he had accomplished, and the experiences he had enjoyed. Our lesson: live life to its fullest, with spirit, grace, and zest.

My prayers are with his family — His dad Big Russ, his wife Maureen, his son Luke, and his co-workers at NBC. We were all lucky to have him while we did. And we can all thank him for these final lessons about living a quality — and healthy — life.

Want more tools and commentary for sharp patients?
Sign up for Every Patient’s Advocate email tips
- - - - - - - - - - -
Join Trisha in the Patient Empowerment Forum at About.com
- - - - - - - - - - -
Or link here to empower yourself at EveryPatientsAdvocate.com

Moms With Alzheimers Need Mother’s Day, Too

No comments yet! »

My Parents

At least I think they do.

I returned a few days ago from spending a week with my parents in Florida. My mother is in a “Memory Support Center” — a too-hopeful title for a place where people who suffer from Alzheimer’s Disease and other dementias can benefit from assisted living and nursing care, plus daily activities for supporting what memory they still have.

Mom was diagnosed with Alzheimer’s disease about nine years ago. It’s been a very long and sad road, especially for my dad who has been at her side, on and beyond what most caregivers, even spouses, provide. He has been there for her through too much thick and even more thin. My sisters and I have worried that her debilitation would be the death of him.

What do you do for a mom who has Alzheimer’s disease and apparently has no memory of even her children?

You do the same as you would do if she remembered every moment of your lives together. Because honoring her and loving her doesn’t change, just because she doesn’t seem to get it. So my sisters and I sent flowers. And when I visited last week, I gave Mom a teddy bear with angel wings and a halo.

And then you do what you need to do to support prevention or cure for this “long good-bye,” so others won’t suffer the same way. To honor Mom, my sisters and I donate to the Alzheimer’s Association, and we walk in the annual fundraising walk each year. We’re doing what we can do.

I hope your family is never touched by this horrible disease. If it is, you may be interested in some of the material found on this blog. If you’d like to share more information about your experience with it, feel free to leave comments in the Alzheimer’s section.

And if you don’t deal with it — count your lucky stars.

Want more tools and commentary for sharp patients?
Sign up for Every Patient’s Advocate email tips
- - - - - - - - - - -
Join Trisha in the Patient Empowerment Forum at About.com
- - - - - - - - - - -
Or link here to empower yourself at EveryPatientsAdvocate.com

How Bio-Fueled Cars Could Lead to an Increase in Obesity

No comments yet! »

I ran errands this afternoon. As I trekked down the highway on my way home, past a few big box stores, then farmers’ frozen fields (yes, it’s still very much winter here in Upstate NY), I realized my stomach was growling, and I smelled the very distinctive and enticing odor of — french fries!

No — there were no fast food restaurants anywhere nearby. A few gas stations, a snow-covered golf course — but nothing that could possibly be a source for the french fry smell.

Further, I could smell them for several miles… and I realized that the car in front of me was the source… using bio-fuel made from old vegetable cooking oil. I was actually relieved to figure it out.

But I realized what a problem that was for me. That smell really made me crave french fries! I really REALLY wanted some french fries! The biggest problem for me is the fact that I’ve been working hard for several months to lose some weight. I’ve been successful so far, but that’s because I’ve kept myself from getting near temptation very often….

And all that made me think…. We have a major obesity problem in this country. In my own work, I hear frequently from doctors who get frustrated that their overweight patients somehow expect to be cured of diseases that have been caused by their extra poundage…

Childhood obesity is epidemic. Children are sicker, even developing type II diabetes which I’m told was highly unusual until just a few years ago.

So what will become of these people who are trying to lose weight if vegetable-oil fueled cars take to the road in larger numbers? If our world begins to smell like french fries?

I don’t have the answers! And I could never seriously suggest that alternative fuels aren’t a whole lot better option than the options we seem to have right now — pouring liquid gold middle-east sourced gasoline into our cars.

But it’s worth a second thought, don’t you think? Or does that then lead us to the question about solar-powered cars and skin cancer?

I’m just sayin’ ….

Want more tools and commentary for sharp patients?
Sign up for Every Patient’s Advocate email tips
- - - - - - - - - - -
Join Trisha in the Patient Empowerment Forum at About.com
- - - - - - - - - - -
Or link here to empower yourself at EveryPatientsAdvocate.com