Politics and Medicine : Every Patient’s Advocate

Peter Jennings, Healthcare Reform, Asking the Tough Questions

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As more and more questions are being asked about how we Americans can possibly continue to pay for our healthcare, a documentary has surfaced that will help us citizens better understand why the American Healthcare System is on the ropes, and ready to implode.

A new website called Snagfilms is now offering documentaries, independent films, and other less available motion pictures for any and all to learn from or be entertained by. Among them is this report which Peter Jennings was just finishing when he was diagnosed with lung cancer, just months before he died.  In fact, while he handled the interviews for the program, someone else had to do the narration because Jennings, ironically, was too sick to do so.

This report addresses healthcare costs, responsibilities, and who is really paying for all those 47 million people who don’t have private insurance.  It will open your eyes, frustrate you, and give you good reasons to begin getting involved in the conversation.

This American dysfunction WILL implode.  Make no mistake about that.  Watch this report to learn some of the reasons why.


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What Tim Russert Has Taught Us About Healthcare and a Healthy Life

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Tim RussertLike so many of you, my heart breaks at the loss of Tim Russert. On so many levels, we felt a kinship to him. Anyone who has tried to understand American politics or politicians during the past 20 years has gotten to know Tim Russert, as if he were the trusted friend and neighbor who could help us “get” it.

Our world is now less because we don’t have Tim. And It occurs to me that there are some final lessons we can learn about healthcare from him. Just as he helped us understand politics, he can help us better understand healthcare and a healthy life — as follows:

It turns out that Tim was quite watchful over his heart disease. He had been diagnosed, and was under a doctor’s care. He took his meds, he watched his diet, he exercised, and he got his regular check ups. He was a vigilant patient. Our lesson: being a vigilant patient, doing our best to prevent problems, following all the rules for good health, doesn’t mean life won’t still be too short.

We’ve learned that no matter how many studies exist, no matter what tests can be run, no matter what drugs are available, no matter how well we manage our diets and exercise, there are aspects of a body’s function that just can’t be controlled. Our lesson: Medical science still has a very long way to go.

We’ve learned that good quality medical care doesn’t always translate to a longer healthier life. Yes, I think that over a population of people, better care equals a longer life — BUT — Tim had the best care available in this country, and he died way too young, in his prime. Perhaps without that good care, he would have died even younger? We’ll never know… Our lesson: having good medical care is a plus, but it’s only one tool in determining longevity.

We’ve learned that even the best medical care can’t make up for 1) bad genes or 2) bad choices or 3) extreme stress — any or all. What we don’t know is whether Tim was a smoker when he was younger, or whether he survived on hamburgers and greasy pizza before he turned 55. We don’t know if there was heart disease in his family. We can assume his life was quite stressful. Our lesson: we can’t expect medical miracles to overcome bad genes, heavy stress or bad choices.

Tim taught us that we just never know when our final moment will be — and we need to be prepared. His family was the most important part of his life. He left this world making sure they knew exactly how much he loved them — his dad, his wife and his son. Our lesson: At any moment in life, be sure those you love know just how much you love them. It’s important for your own health, and their health and well-being, too.

Tim had very strong spiritual beliefs, and surrounded himself with spiritual people. In the difficult times, believing in a higher being can be very comforting. His family will find some comfort in the coming years based on that faith, too. Our lesson: Life can be enhanced, health can be supported, and comfort can be found through spiritual beliefs.

Finally, we’ve learned from Tim that one’s legacy is about character and a zestful approach to life. We have to believe that in that instant the heart attack struck, when his life passed before him, he knew it was all good, and he would not have changed one moment of who he was, who he loved, what he had accomplished, and the experiences he had enjoyed. Our lesson: live life to its fullest, with spirit, grace, and zest.

My prayers are with his family — His dad Big Russ, his wife Maureen, his son Luke, and his co-workers at NBC. We were all lucky to have him while we did. And we can all thank him for these final lessons about living a quality — and healthy — life.

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Update: Carmelo Rodriguez’ Ignored and Missed Diagnosis

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I first told you about Carmelo Rodriguez last January. He joined the Marines in 1997 and during his induction physical, the doctor found a spot of melanoma, recorded it in Rodriguez’ medical record, but never told him about it.

Over the years, that spot grew, became inflamed, and filled with pus. While in Iraq, the military doctor told Carmelo not to worry about it, it was just a wart. In January of this year, Carmelo died from the melanoma.

Compounding the ignored diagnosis was the fact that the Marines discharged Carmelo to go home and die. Then, because he had been discharged, they refused to pay for his military funeral.

Further compounding this enormous insult to his family, and the tragedy of his loss, is the fact that, by law (called the Feres Doctrine), the military doctor who missed Carmelo’s diagnosis cannot be sued.

Carmelo Rodriguez is back in the news today. The congressional representative from the district in which he lived has introduced a new bill to change that inability to sue. Called the Carmelo Rodriguez Military Medical Malpractice and Injustice Act, it allows soldiers, or the families of lost soldiers, to sue the military doctor who harms the soldier or misdiagnoses him or her.

The question here is fairness. It seems quite unfair to me that an ordinary citizen would have the ability to right a wrong through the courts, but a soldier, the very person who fights to retain that right for the rest of us, doesn’t have that same ability.

I’ll be watching what Congress does with this. I expect you will be watching, too.

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Conspiracy Theories, Reversing Kidney Disease, and Personalized Medicine

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Over the years, I’ve had conversations with a handful of health conspiracy theorists. They claim there is a cure for the common cold, but the makers of symptom relief medicines block that cure from making it to the marketplace. OR, they claim certain cancers can be cured, but the cures have been developed by the companies that manufacture the machines and drugs that keep it at bay, and more money can be made over time by keeping someone partially sick instead.

I have no idea who is right or who is wrong. I do believe that these kinds of coverups take place. I’ve read about them and written about them. And I had my own experience with an oncologist who wanted to make money from putting me through chemo when I didn’t really need it.

Several months ago, I blogged about a treatment for lymphoma patients that is kept secret by most oncologists. Since it can only be offered at academic medical centers, meaning most oncologists can’t profit by it, they don’t tell their patients about the treatment which could save their lives. Instead they offer an inferior treatment option that provides profits to them, but doesn’t do as much for the patient as the unmentioned drug administered at another center.

The big problem, of course, is that there are charlatans across the globe claiming to have developed treatments for any malady large or small. Patients diagnosed with a lifelong or life threatening disease or condition seek any small piece of hope, and spend money and waste their time to pursue that hope, only to have their hopes dashed. It’s a sad fact of medicine. And it becomes difficult to weed out who is being truthful.

A few days ago, I was contacted by a physician scientist who asked me to alert you about a cure for kidney disease if it’s caught in the early stages. Now — I’m not a health professional, so I’m very VERY reluctant to showcase these kinds of things, or to comment on them. But I did ask for an explanation of how it works, and it turns out that it is a treatment that is based on genetic code.

It’s based on the concept of personalized medicine. In this case, the genes responsible for kidney disease are reviewed, and, according to David Moskowitz from Genomed, the company that has applied for a patent for this treatment, if the patient is in the earliest stage of kidney disease, then it can be reversed. That’s been documented with more than 1,000 patients, published in a peer-reviewed journal, and the basics are available at PubMed.

Reversed? Good grief — that means cured, doesn’t it? So if that’s true, then why don’t we hear about it in the mainstream press?

The answer, for those who buy in to conspiracy theories, is that the info doesn’t make it to the mainstream because too many others stand to make too much money as long as patients are tied to kidney dialysis, surgeries, drugs and other profit-producing treatments.

I can’t tell you whether this approach for reversal of kidney disease works. But I can tell you that they have applied for a patent — not FDA approval, but a patent. Also, they don’t administer any treatment. Instead, they work with your doctor to help you. It does sound on the up and up, doesn’t it?

So if you are in the early stages of kidney disease, or if you are at risk because others in your family have suffered from kidney disease, you might want to take a look. The same holds true for people with COPD or high blood pressure. They’re developing life saving treatments for those diseases, too.

Conspiracy theories? Just because we’re all paranoid doesn’t mean they aren’t out to make money from us.

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