Archive for the 'Patient Empowerment' Category
August 14th, 2014 by Trisha Torrey
You mostly see them in airline magazines. But sometimes I see a banner or badge on a doctor’s website, or even a hospital’s billboard.
Big proclamations they are! Dr. Horatio P. Speshultee is a TOP DOCTOR as ranked by some organization or another. Or ST. HARELDA’S HOSPITAL has been ranked #1!
Oh really? Says who?
And, fellow patients, THAT is the key. WHO SAYS and HOW MUCH THEY PAID FOR THE RANKING is the most important part of all of this. Because if you are choosing hospitals or doctors based on such labels, the label originator and its purpose will have a huge impact on your ability to get the care you need. Making bad choices based on the wrong assumptions can only be trouble.
I raise this today after reading this piece in the New York Times, Top Doctors, Dead or Alive.
The author, Abigail Zuger, MD reviews an invitation to her 16-years-long-dead uncle to be considered a TOP DOCTOR ranking. Maybe he was a good doctor when he will still alive, but… ? A little suspect at the least.
I’ve seen these sorts of invitations before. I get them from some company called “Who’s Who” – I can be a Who’s Who in all kinds of great things – from business to marketing and maybe even patient empowerment (although I haven’t seen that one.) It’s a company that produces directories for those with an ego. If you fill out the paperwork, and pay a sum of money (not usually more than $79 or $89) then you TOO may be listed in that directory and get your very own copy of it!
Please note – no one is vetting this list. No one is looking to see if any real accomplishment is tied to it. You pay your money, you show up in the book. And you get to list all your accomplishments, dubious or not, true or not. These companies have been in business for decades, hawking their flattery and reeling in the profits. I can only think that it’s intent is solely to stroke egos. But hey – if it pays the bills… who am I to ask questions?
Well – maybe I’m exactly the one to ask… because when it comes to proclaiming these doctors are any good…. well then….
Therein lies the rub. With no actual vetting taking place, and without knowing who WE are and what WE need, how can anyone claim these doctors to be at the top? And, frankly, at the top of WHAT? The top of the list of doctors who make the most money? Or have the biggest egos? Or do the most facelifts? or? TOP doesn’t tell me a darn thing.
And yet, there are patients who fall for the hype every day.
Now, we Who’s-Not-Whos don’t usually see those directories (they look impressive on the doctor’s bookshelf), but we actually do see the results of similar efforts in magazines. TOP DOCTORS, TOP PLASTIC SURGEONS, TOP STEAKHOUSES… we’re impressed, right?
Don’t be too impressed. At least not until you figure out how the rankings were done, and what the standard for “top” is, and maybe even most important, whether that “top” designation was simply based on whether or not a check was written. You’ll need to check out the fine print to see who sponsored the ranking, and what had to happen for that label to be publicized. Then decide whether or not you want to believe it. You might be surprised to know that some of the biggest names in websites and magazines that provide these TOP designations display their choices based on advertising dollars paid.
For me – I see egos all over those faces. I don’t see excellence, and I don’t see anyone who is focused on his/her patients or their outcomes. I just see someone who wrote a check to someone else who would promote the label on their behalf.
And I’m not buyin’ it.
Here is more information on researching the best doctors for you. (And note, no TOP designation is required.)
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July 31st, 2014 by Trisha Torrey
This post at Kevin MD made the rounds again last week. Written by Mary Pat Whaley, and entitled , “Your 10 minute office visit needs 8 people and 45 minutes of work” it describes all the background work that takes place before, during and after a doctor visit so that patients won’t be so surprised that their visit costs so much money.
It’s an important perspective for patients to understand, certainly. While most of us realize that there is much more that takes place behind the scenes than we are aware of, we really have no idea what it takes to support just one 10 or 15 minute appointment. This is a good overview, even if three years after it was first published, most of us experience it differently due to the shift to electronic records.
That said… to Mary Pat and others who want to defend that $100 charge – we patients still don’t get it, no matter what explanation has been provided.
We’ll ask you instead to look at it from our perspectives: We have just spent an hour in your office waiting for our drive-by visit with the only person we really came to see. Then you tell us it cost $100 for that 10-15 minutes, which we translate to $400 an hour for his or her time. Further, from our perspectives, all he did was ask a few questions, embarrass those of us with modesty issues, and then leave. We rarely feel any smarter. Some of us feel belittled and unworthy. And then we are expected to pay for the insult.
Suppose you were treated the same way by any other service you needed yourselves… What if your car mechanic treated you like that? Or your hairdresser? Or your accountant or lawyer? You know you would walk away, no matter how they justified those charges to you.
So – let’s look at this another way:
Continue reading ‘The Cost of a Doctor Visit – Where is the Value?’
July 14th, 2014 by Trisha Torrey
Get better medical care: Practice Practice Practice!
Think back 10 years. How old were you – or your kids or even your grandkids? (Did even have kids or grandkids then?) Did you live in the same place, or work for the same employer or do the same job you do now? Have you rearranged your living room furniture, or learned to use a computer, or even acquired a smart phone since then? In those days 9-11 was still fresh like it had been yesterday, no one (except Al Roker) had heard of a polar vortex OR Barack Obama, the New England Patriots were the reigning Superbowl Champions, and Usher, Outkast, Alicia Keys, Maroon 5 and Beyonce were at the top of the music charts. (And most of us had more hair, and weighed at least 10 lbs less than we do now.)
I ask, because 10 years ago today is the day I learned I had terminal lymphoma. Subcutaneous Panniculitis-Like T-Cell Lymphoma to be exact. I learned that fact while on the telephone with the surgeon who two weeks earlier had removed a golf-ball sized lump from my torso about 7 PM that evening, July 14, 2004, while I had a house full of dinner company.
It was an impossibility on that day, or over the next couple of months, to think I would be here writing something for all of you to read today. Beyond the fact that blogs were barely in existence on any topic then – I was supposed to be long dead.
That diagnosis changed my life in almost every way possible. It was the worst day of my life, but in the 10 years since, it became the turning point to the best life I could possibly have.
In case you don’t know the story – yes – I had been misdiagnosed. And I figured it out. And in fine “hell hath no fury” style – I chose to devote the rest of my life to helping others prevent the problems with their medical care that I had experienced myself.
I am, after all, a Proactive Survivor. And because I am, instead of dwelling on the horror of my medical experiences during those months in the summer of 2004, I will instead share with you what I have learned since then. Things I have practiced and practiced, preached and preached – and which can help you, too:
Continue reading ’10 Years of Lessons Learned from Misdiagnosis and Medical Mistakes’
July 2nd, 2014 by Trisha Torrey
You found me! Here I am!
And I’m moving back in, here to my personal blog. Home. Where I started writing about Patient Empowerment in 2005.
It’s been awhile since I’ve been “home.” Look around! You can see how dusty it is. I’ve got to wash the curtains and get them back up. Clearly the place needs to be swept and vacuumed. Those are all tasks I’ll get squared away in the next few days. Give me a week and I may even get some new paint on the walls.
Are you wondering why I’ve moved back home?
Simple answer – it’s because I was sent packing.
Most of my regulars know about my work at About.com Patient Empowerment. I started writing for About.com in late 2007 and in all, I published more than 800 articles on topics from how to be an empowered patient, to how to get your medical records, to how to look up CPT codes, to how to deal with an arrogant doctors and much, much more. In addition to those 800 articles, I wrote more than 1000 blog posts! And I would still be writing and publishing there today… except that….
I was terminated June 30. Gone. Kaput. Right in the middle of my contract year. They decided they didn’t want me anymore and cut me off. Chop chop.
If you want details, here they are. But that’s not the point of this post.
This post is to tell you that I’m going to lead by example. That is – throughout my patient empowerment work, the advice I always give to you is to stick up for yourself and to be sure to take responsibility for the situation you’ve been dealt. Don’t take crap from anyone. YOU are the most important stakeholder in your own care and to get what you need, you need to take the lead.
So that’s exactly what I’m doing here. As much as I loved my work with About.com, it’s no longer an option. So I’m moving back home, gonna spiff up the place, and will begin publishing again right here to keep my commitment to helping you, my readers, get what you need from the healthcare system.
Here are some of my plans:
- I’ll be writing articles just like I was writing them before – so – what topics would you like to see?
- One of the recent changes About.com had made was to take away YOUR opportunity to comment on articles and blog posts. By publishing here, I’ll be restoring that capability. So please do comment! I learn from you every time.
- In the past two years I was sending out only 5-6 newsletters a year from this personal site, but now that there will be no more newsletters coming from me at about.com* I’ll begin sending from here. You can help too, by letting your friends know. Here’s the link you need to get signed up.
Together we’ll weather the healthcare system together, whether About.com wants to help in that effort or not. I’m still Every Patient’s Advocate. They can’t take that away from me. And I’m here for you.
Are you with me? Great!
(Now could one of you big strong guys help me move my desk over there – under the window? It’s a beautiful day, and I don’t want to miss the sunshine.)
I’ll be back soon with some usable healthcare information. All suggestions welcome
*about.com will likely continue to send patient empowerment newsletters, and for the foreseeable future, they will be my articles. But there will be nothing new that hasn’t been sent out in a newsletter previously. Feel free to unsubscribe if it gets to be redundant.
More: At About.com, Experts Are Disposable
May 3rd, 2012 by Trisha Torrey
Story One: When I was a child (and we’re talking a lo-o-o-ng time ago – when doctors made house calls)… if I got an earache, I would suffer. REALLY suffer. Mom would drip some warm oil into my ear, and then stuff some cotton in behind it. She’d give me an orange flavored baby aspirin or two. And I would just lie in bed, or on the couch, miserable. MISERABLE. Seems like I would sleep a lot. Two days later, my earache would be gone, and because I was a kid, and resilient, I would be back on my feet.
Story Two: When I was a kid, I fell off my bike as I flew around a corner near my house. My bike flew off in one direction and I flew in the other, and landed smack on my elbow. OH THE PAIN! I pulled the cinders out of my arm, and cried all the way home as I dragged my bike with me. That evening my dad walked me across the street to see a doctor who lived in our neighborhood. He felt along my arm, moved it around a little, declared that I had sprained it, then put my arm in a sling where I was expected to keep it for the next few weeks.
Perhaps it’s miraculous that I survived childhood! But I don’t think so. I think any of us over a “certain age” had very similar experiences as a child. We all had sore throats and earaches, we all sprained and broke bones – and we didn’t have the miracles of modern medical care to help.
Fast forward to today. Today when we go to the doctor, no matter what the complaint, we are met with a barrage of tests, procedures and treatments. If I had a sore throat and an earache in 2012, I would likely be given a strep test (chi-ching!) and prescribed an antibiotic (chi-ching!) If I fell off my bike in 2012, I would be given at least an X-ray (chi-ching!), but more likely a CT scan. I’d be prescribed an antibiotic (chi-ching!) and maybe even a pain killer (chi-ching!) I’d need follow up testing to see how well everything was healing (chi-ching!)…
Bottom line – healthcare is so much more expensive today because we do things that we don’t necessarily need to do. We are herded into services that we don’t necessarily need. And (shame on us) we ASK for things we don’t necessarily need and probably shouldn’t get.
Don’t need? Shouldn’t get?
Antibiotics, the miracle drug of the 80s and 90s, were so overprescribed that today the bugs they were intended to kill have evolved into superbugs. People die from acquiring infections that didn’t become problematic until the overuse of antibiotics. Yet – mom takes her child to the doctor with an earache and insists an antibiotic be prescribed for her child. Two days later, the child is no longer in pain. (But is that any improvement over the two days it took me to get past my earache 50+ years ago?)
The existence of CT scanners, MRI scanners and PET scanners, and the need to pay for them, compel doctors to order those tests, even in cases when they may not be necessary. Of course there are times when they are very necessary – but not always, and not as often as they are used now. When it comes to so much extra scanning, it can create big problems for our health (too much radiation exposure from x-rays or CTs) AND our wallets – imaging is expensive, even when we have insurance.
So how can we know the difference? How can we be a bit more savvy when it comes to test and treatments, whether or not they are suggested by our doctors?
Last month, a consortium of nine different medical specialties – the very doctors who make money when we have tests and treatments – came out with their lists of tests, treatments and procedures we patients don’t need. They listed them all on a website, called Choosing Wisely.
If these doctors don’t think we should take these tests, then why would we have them?
What we know is that this elite group has made these recommendations. What we don’t know is that those recommendations will filter down to the doctors who order these tests, treatments and procedures – because that’s how they make their money, and (they think) that’s how they can defend against lawsuits. (We can only imagine how unhappy that orthopedist who makes his living running CT scans is with his own peers that tell patients not to get so many CT scans.)
So, knowing that our doctors may not be aware of the lists, or may have chosen to ignore the lists, it’s up to us patients to ask questions. “Doctor, If I take this antibiotic, how soon will I feel better? How soon will I feel better if I don’t take it?” — or — “Doctor, I know an X-ray is much less expensive than a CT scan. What will a CT scan tell you that an x-ray won’t? Can I have just the x-ray?”
So yes, fellow empowered patients, it’s time for us to begin making smarter choices, both for our wallets and for our health. Make yourself generally aware of the new recommendations of tests, procedures and treatments you just don’t need. Understand that leaders in healthcare who understand about reining in costs, even if they are the ones who lose income, are calling out to their peers to make changes in their recommendations….
Unfortunately, anything in medical care takes a LOT time to implement. But this is something we patients can do – and do with no detriment to our health OR our wallets.
Want more Patient Empowerment?
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