http://www.healthdatarights.org . Thanks!

I’ve been looking for something like this.

Trishalina

From HealthDataRights.org, the Declaration of Health Data Rights:

In an era when technology is allowing personal health information to be more easily stored, updated, accessed and exchanged, the following rights should be self-evident and inalienable. We the people:

• Have the right to their own health data
• Have the right to know the source of each health data element
• Have the right to take possession of a complete copy of our individual
health data, without delay, at minimal or no cost; If data exist in
computable form, they must be made available in that form
• Have the right to share our health data with others as we see fit